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Children and Youth with Special Health Care Needs: Transitions from Pediatric to Adult Care Policy Options

MACPAC staff presented revised policy options to address challenges related to transitions from pediatric to adult care for children and youth with special health care needs (CYSHCN). Staff initially presented policy options at the December meeting. The policy options focus on requiring states to develop a strategy for transitions of care for CYSHCN, which includes developing an individualized transition of care plan and making the strategy publicly available; issuing guidance to states on existing authorities to cover transition of care related services for CYSHCN; requiring states to collect and report data on access to transition of care related services as well as beneficiary and caregiver experiences with transitions; and requiring interagency agreements to specify the roles and responsibilities of state Medicaid and Title V agencies in supporting CYSHCN transition from pediatric to adult care.