Medicaid plays a large role in covering health care services for children and youth with special health care needs (CYSHCN). As CYSHCN reach adulthood, they need to transition from child to adult coverage and health care, which can be challenging for beneficiaries and their families. Our work examined state policy on transitions of care and beneficiary experiences when transitioning from pediatric to adult care. During our previous session in March, we presented findings from our federal and state policy scan and literature review.
This session provided background information about CYSHCN and their transitions of care, including survey data findings from MACPAC’s recently-published Access in Brief on CYSHCN, and findings from stakeholder interviews and beneficiary focus groups. We found that there is variation in how states operationalize their transition of care policies for CYSHCN, and in how beneficiaries and their families experience the transition process.
