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Transitions of Care for Children and Youth with Special Health Care Needs: Policy Considerations and Options

As children and youth with special health care needs (CYSHCN) reach adulthood, they need to transition from a pediatric to adult model of care. Findings from our work demonstrate that Medicaid-covered CYSHCN can experience challenges with this transition. This session provided a summary of findings and challenges, including those related to a  lack of clearly documented transitions of care approaches from the state Medicaid agency, a lack of guidance on how transition-related services can be paid for using existing state plan and waiver authorities, a lack of measurements of CYSHCN and their transition outcomes, and a lack of coordination between Medicaid and Title V agencies.

During this month’s session, MACPAC presented four policy options for Commissioner consideration to address these findings.